Our Lil' Hero: Quote from a friend

Tuesday, February 1, 2011

Quote from a friend

I have so many people tell me how strong we are and they'd never be able to do it. Well my good friend Kaydi sent me this and to me it's very true. Thank you Kaydi you know what it feels like to stay strong also!
"You never know how strong you are until being strong is the only choice you have"

3 comments:

Heather K. said...: I love that! It's true, I thought I would absolutely die having to go through something tough but found that I'm still alive! :)

I'm so glad that Mason is doing so well! Hopefully he is off the ventilator now so he can get it out of his throat and rest easier. I can only imagine how annoying that would be. I'm hoping the meds are still where they need to be too since they took some time adjusting them yesterday. Can't wait to hear an update on him! :); February 1, 2011 at 3:55 PM
Hillman's said...: I love this saying! I have it at my desk at work and also saved on my phone. You both are very strong! Love you guys!; February 1, 2011 at 4:08 PM
thecannon5 said...: That is SOOO True! Thank goodness our Heavenly Father knows just how strong we are as well, and when we just need him to lift our burdens. Love you guys and pray all continues to go well!; February 1, 2011 at 6:31 PM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.