Our Lil' Hero: Mason's First Wagon Ride

Saturday, February 5, 2011

Mason's First Wagon Ride

Well we are all going a little stir crazy I think including Mason. He is either in his crib or I am holding him in the rocking chair right next to his crib so not much to look at! He hasn't been sleeping at all but is so tired so I asked his nurse if we could unhook him and go to the window right outside his door and she said they could hook him up to a portable monitor and they could get a wagon and we could go on a walk! So we did, it was so nice! Mason loved it and it actually put him to sleep and he slept for a whole hour! He is still throwing up but not as bad so the plan is for us to go home TOMORROW!!! :) :) He has lost weight and doesn't quite weigh 10 lbs anymore. He weighs 9.8lbs. The nurses and techs just love Mason and love to come in a talk to him, (when he is not grumpy that is!) There isn't much more to update today just hanging out! Here are some pictures off of my cell phone of Mason's First Wagon Ride!

1 comment:

Hillman's said...: It was so good to see you guys last night! I love the pictures of him in the wagon. Especially the one of him sleeping! That's great news that you can come home tomorrow. Love you guys!; February 5, 2011 at 3:45 PM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.