Our Lil' Hero: Tonight!

Friday, February 18, 2011

Tonight!

Tonight at this point we will be going home!!! WAHOO!! Everything is looking great. Mason's labs have come down, his incision looks good, and he is happy! The only thing we are waiting on is in this mornings xray it showed that the PICC line is still in too far so we are waiting for IV team to come and pull it back a little farther then stitch it back into place. Last time they did it he screamed because they have to put him on his belly (his PICC line is behind his knee cap) holding that leg up so it had TONS of pressure on his sternum which was just opened up and then when they stitched it into place they didn't give him anything so needless to say there was ALOT of screaming from him. The Nurse Practitioner didn't want that to happen again so she ordered numbing cream and morphine for it. They put the numbing cream on about an hour ago. They said it takes one hour for it to take full affect and it will stay numb for 4 hours so anytime now they will be coming to do that. Then after that we just have to do a little more education with the PICC line and they have to set up home health for us to get the antibiotics and we will be able to go home! Mason is still proving to be such a little fighter, we are so lucky to have him in our family.

7 comments:

brandib said...: Yeah!!! so good to hear he is going home. Keep your heads held high - if you ever need any help Amberli and Tasha are not to far away.
Love you guys!!; February 18, 2011 at 1:09 PM
Katy said...: I'm so happy you guys are coming home! Mason is such a strong little guy! He's been through so much. We love you guys!!; February 18, 2011 at 1:12 PM
The INCREDIBLE Pettit's said...: That's great news, my fingers are crossed for you!; February 18, 2011 at 1:26 PM
brenda said...: Your whole family has proven to be strong, you guys could have thrown a pitty party and just been done with everything but you guys are all so strong and have learned so much to make his life better and I look up to all of you for how strong you are! Love you and so excited to be able to come over and see that cute smiley little boy!; February 18, 2011 at 6:30 PM
Heather K. said...: Glad that's he's doing so much better and you guys were able to go home! :); February 19, 2011 at 8:47 AM
Bj said...: So good to hear! Hope you guys are home now and getting re-settled in!; February 21, 2011 at 6:07 PM
pmday said...: Very cute pictures! I'm glad you're heading home again and hope that things go better this time. We are still praying for you guys and hope that little Mason keeps being such a fighter. Have a great day!; February 24, 2011 at 8:14 AM

Post a Comment

A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.