Our Lil' Hero: Long Day!

Monday, January 31, 2011

Long Day!

Well after 7 1/2 hours Mason is out of surgery!! Nothing went wrong it just took longer to get through scar tissue and to stop bleeding after. He is doing pretty good. They are trying to figure out his meds because he isn't responding to some of them but just before we left they were trying a new one for pain and it was seeming to work. He is still has a breathing tube but we are hoping by the time we get back he will have passed his trial breathing on his own and it will be out! We got a room at the Ronald McDonald house and it seems to be a good place from the tour. He's still being such a fighter! So there is a quick update, I'll update again tomorrow night. HAPPY 4 MONTH BIRTHDAY tomorrow Mason! :) Thank you everyone for your thoughts, prayers, and those who have been fasting.

4 comments:

Ayers Clan said...: Soo glad to hear that everything went well. Hope it continues to go well and you and Zac stay strong like you are. Love you guys; January 31, 2011 at 7:51 PM
thecannon5 said...: Glad to hear all went well, that is sooo great. Soo glad you get to stay at the Ronald Mcdonald house, I took a tour there once in mutual, it seemed like an awesome place, you will meet a lot of neat people. Lots of love and prayers coming your way!; January 31, 2011 at 8:25 PM
The INCREDIBLE Pettit's said...: I'm glad he is resting and doing well. I'm glad YOU are resting and doing well. I was hoping I could come see you on Thursday and bring you a care bag... Iet me know, I should be up there from 1-3.
Heart Hugs-Brytten
President of IHH
brytten@ihhearts.org; January 31, 2011 at 11:03 PM
Bj said...: Thanks for the update! I am really glad to hear that all went well! We are thinking about you and sending prayers your way!!; February 1, 2011 at 10:53 AM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.