A Day to Celebrate

Mason is TWO!!!!!

 

 

I am feeling so blessed today knowing we made it through another year, and a good year at that! It has been over a year since we have had an admission and Mason is doing great and acts like your typical little toddler boy! Two years ago it was uncertain he would make it to the next day, let alone to two years old! Mason is so fun and spunky! He loves Mickey Mouse, Elmo, anything with wheels, bubble baths, his blankie, oreos, and most of all he loves family and people in general.  Everywhere we go people are drawn to his loving personality.  He says hi to everyone and tells them something about wherever we are. Nobody can ever get enough of him.  He is definatly one special little kiddo.  He is still on the small size but you know what they say, dynamite comes in small packages.  We had his birthday party over the weekend and one of our family members said, watch when he is older he will be in extreme sports! He is really that crazy and active plus on top of it he is super coordinated!   He weighs 19.4 lbs and is 30 inches long.  His heart is still doing really good so we are hoping we can stay healthy through the winter and keep our roll of no admissions. I have to thank my good friend Stephanie for taking these great pics for us, they couldn't be more perfect! You can see more of her work here.

 

Happy Birthday Mason, we love you so much and are so glad you are apart of our family! You have taught us more about life in the past 2 years than somepeople learn in a lifetime.  You make us want to be better people.  Your big personality can change any bad day into a good one! Keep fighting, we know you can win!♥



Update

 My goal for the summer is to update alot more than I have been! I have people ask me all the time how Mason is doing because I have been a slacker at posting! Mason is doing the best he has ever done.  He acts like a typical crazy 20 month old boy! He runs, kicks and throws balls, talks, plays trucks, he likes to swing, and go down slides, loves guns(I guess some of these come in because he loves to do anything Ryder does), loves Toy Story and Transformers. He likes to hide things from people and is one of the silliest little kids with such a huge fun personality!  You wouldn't think anything is wrong with him by just looking at him.  He still has things that makes him tired.  He still can't climb all the way up the stairs in our house and when he has been running around for awhile his lips turn a lovley shade of blue and he starts to fall down alot, but none of that phases him and he doesn't let it stop him either.   We still haven't been able to go longer than 4 months without having a cardiology with sedated echo and even though he is doing great they still have us coming in that often with a sedated echo everytime,  I used to have a hard time with it saying things like "other kids get to go longer so why can't Mason" But I have come to terms with Mason is his own person and even though one kid can go 6 months and others 1 year Mason, as they always say, is not their typical case and he is a little more compilcated in his heart anatomy having the other defects, leaky valve, and extra vessels.  We have his next cardiology appointment with the sedated echo in 2 weeks and I am expecting nothing but good results. Thanks for keeping tabs on our family! I feel lucky to have such a great support system with our friends, family, and even from people we have never met!

♥ 

I love this picture so much! Thanks Ali for snapping this cute pic at the park!

Our Heart Hero Mason!

So a friend and fellow heart mom of mine made this for Mason..... Isn't is simply awesome?!!! Thanks so so much A.Rae, I love it!

The best thing about a blog.....

Is it can turn into a place to vent and release feelings! Mason has had a cough since December 1 and it hasn't gotten better at all. He also is starting to look a little puffy in his face and belly. Worried people should not be allowed to use Google because what happens when I look up those symptoms??? They are all signs on heart failure! I called his cardiologist and told him what had been going on and they got him fit into an appointment on the 27th for an Echo and a good check up. I have alot of hope that it isn't failure that it is just something else that is random and no big deal, but still makes me a little nervous. I keep reminding myself that faith and fear can't occupy the same space so I am trying to push the fear out so I can keep the faith in. Other than that he is doing pretty dang good for such a fragile little guy. We(and when I say we I am really meaning me) are ready for summer to come back especailly now that we are in full swing of RSV season and are now starting to be homebound to keep us all healty so we don't give anything to Mason. Well there you have it, my release for the day :) Thank you to all of you who still read the blog and keep us in your prayers! The power of prayer is so amazing, and you all have a special part in our little Miracle. ♥