Our Lil' Hero: Another Day

Friday, February 4, 2011

Another Day

Well just another day on the Surgical Unit. I wish I could say it has been uneventful but I would be lying a little bit. Mason knows what he wants and thats what he is going to get! I love that he has a strong personality already but not so much when the only person he will eat for is me. They tried so hard to let me get some sleep last night but he did not want anything to do with them, and as soon as I would hold him he'd stop and eat, Already a Mamas boy! :) He was really fussy all night only sleeping 30 min to and hour at a time so it was kinda a sleepless night and then today he is throwing up a lot. They are not sure why yet but he seems kinda miserable. But it is just a very minor issue at this point. If everything keeps going as planned we are looking a getting discharged Sunday or Monday! So cross your fingers! They still call Mason an "All Star" That's how they referred to him last time and he is still the little All Star! I can't wait to get home on my Computer and upload all the pictures, you guys better be ready for a picture overload!

(I was able to take this pic with my phone in a happy moment of the day!)

3 comments:

brandib said...: Mollie - I hope everything is ok. Mom's need their sleep too. LOL!!! He is adorable. Keeping you in my thoughts and prayers. Love you guys!!!; February 4, 2011 at 4:39 PM
pmday said...: Hi Molly,
I just wanted to say hi and that you guys have been in our prayers. I'm so glad to hear about sweet little Mason's progress. He really is an all star. I hope you get some rest and that he keeps being strong and you get to go home soon. I loved looking at the pictures on your blog. You have such an adorable little family. Good luck. Love you guys,
Kristin and family; February 4, 2011 at 10:55 PM
The Perkins Family said...: Hey Molly and Zac, it's Alisha. I just found your blog and I'm so grateful that everything is going good with your little All Star. He's a fighter and so are you guys. Hang in there. Hope he gets to come home soon.; February 5, 2011 at 1:11 PM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.