Well it is time that I start updating here alot more often especailly where some of you don't have Facebook for me to keep you updated there! Where to start...... WE ARE GOING TO BOSTON, and not for a vacation, or to move there. When looking up the top rated pediatric cardiology units in the United States I came across Boston Children's Hospital and they were in the top because of a surgery they were doing for kids with Hypoplastic Left Heart Syndrome kids. It is called the BiVent or Staged Left Ventricle Recruitment. After reading about it I found some moms of kids that had gone the procedure, told Zac about it and we decided it felt perfect for Mason so after sending his records to Boston and talking to his cardiologist we knew it was perfect if he was a candidate for it. Boston got back to us and told us he was an ideal candidate for it! The surgeon called himself to talk to me about it and answer any questions that I have. He made us feel even more at ease with it. His surgeon is Dr. Emani. Then Mason was assigned a cardiologist over there and she has called and emailed and talked to us a bunch, her name is Dr. Banka and also makes us feel so comfortable with everything. They have given us their emails and told us to email them anytime we have a question. I have and they both get back to me within 6 hours! Pretty dang amazing if you ask me, you can tell they are all about their patients and families and making them feel comfortable! I am having some nervousness just for surgery itself and the fact that a surgery came faster than I was expecting but it still feels so right. We have to fly to Boston in the first of June for some preop appointments and for some procedures before surgery, then his actual surgery will be on June 7th. It is coming up so so fast! We feel so blessed where his heart adventure has led us to and can't wait to better his life. Here are a few links to the surgery that he will be having
I will update the blog alot more often now to keep you in the loop. We are doing some fundraising for expences that this is going to bring. His insurance will cover the surgery so that is a big relief. Another HUGE weight lifted off our shoulders is that we have some family that lives near Boston and has offered for us to stay at her house which saves us alot of money on a place to stay(Thanks again so much Marge, I don't think I will every be able to express how thankful we are for you and opening your home to us). So what we are having to raise money for is airfare for our family, our bills while we are gone(they told us to plan on 6-8weeks) because obviously we will be too far from home to go to work, and food. On the right corner of his blog is a donation button. You can donate to Mason's account by clicking on that. We are also selling super cute Team Mason shirts, the picture of them is below, to raise money. They are 12.00 a shirt you can pay through the pay pal donation button on here and if you want it shipped just add 5.00 per order. We are so grateful for the amount of support we continue to recieve from friends, old and new, and family and feel so loved that we still have so much support with Mason and the decisions that we make as a family to better his life.
Our little snow man... He LOVES playing in the snow!
The Team Mason Shirt
