Our Lil' Hero: Today is Wednesday

Wednesday, February 16, 2011

Today is Wednesday

Well today is Wednesday, they day I was having wishful thinking that we would get to take Mason back home, but that isn't the plan yet. Mason is doing really good the team said this morning from a cardiology standpoint he is exactly where they want him as far as progress goes. The reason we are still here is he is still on IV Lasix so he has to be able to be on oral Lasix. Also this morning on his daily xray it showed his PICC line is in to far, so they have to sedate him again and pull it back and restich it. Also the level of antibiotics isn't as high in his system as they want it so they have had to go up on the dose and wait until tomorrow to draw another level from his blood to make sure it is where they want it. So the earliest we will get to go home is Friday.

4 comments:

Stueller said...: I am sending ((hugs)) :); February 16, 2011 at 10:50 AM
jody said...: Hope Mason is feeling better soon! Love you guys!; February 16, 2011 at 10:56 AM
brandib said...: Keep up the good work mom and Mason!! U guys are in my thoughts and prayers. Love you!!; February 16, 2011 at 11:26 AM
Unknown said...: Thinking of you guys!; February 16, 2011 at 9:28 PM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.