A little video!

Mason is still doing pretty good, still sweating like crazy but his sedated tests are April 20. We haven't heard from the Race yet but from what I read there were over 500 people there!! WOW! What a huge support we got! I still cannot thank everyone enough who came out and supported us! I think that is the day that made me fall in love with Cache Valley. Here is a video of Mason. His smile is so addicting and his eyes are to DIE for! He loves to squeel all the time and honestly I LOVE it!

Prayers for Xander!

Our heart buddy Xander needs all the prayers he can get right now! Xander is also Hypoplastic Left Heart and is a few months younger than Mason. He is still in that scary stage between the first two surgeries and he has come down with RSV. RSV is really bad in healthy babies and is very deadly for heart babies, especailly with ones with such a special heart like his. He is struggling but trying to fight so hard at Primarys right now and could use all the extra help he can get! We are rooting for you Xander!! We are sending our prayers and heart hugs!

Long Day of Appointments!

First I would like to thank EVERYONE that came to the race on Saturday! There was an AMAZING turn out. I feel so grateful for all of our family, friends, ward members, and strangers that came and supported our little guy! I haven't gotten the official number of people who participated but when I know I will for sure post it!

Today we had a long day of appointments at Primary's. Almost 2 weeks ago Mason had a basic hearing test and didn't pass so we started out our day at 9am in Audiology. They did the ABR, a more advanced hearing test. The instructions they gave me was he needed to be sleep deprived so they told me to put him to bed 3 hours late wake him up 3 hours early don't let him eat until we get there and don't let him sleep on the way down.......... I was thinking in my head, YEAH RIGHT! How am I going to keep my 5 month old awake from 4am to 9 during a 2 hour drive?! Needless to say I put him to bed at around 1030,(3 hours late) woke up at 6(1 hour early) and I tried to be very very intertaining on the way down but yep he fell asleep by the time we got to Brigham City! He only slept 30 mins but I was a little nervous they wouldn't be so happy with me! When we got there he was wide eyed but he was such a good little boy and when I fed him he fell asleep in my arms and they were able to do the test and he PASSED with flying colors! We got done with that at 10:30. His Cardiology appointment wasn't until 1:00 so we had to kill time, luckly/not luckly our good friends are admitted and we hadn't seen them since November so it was SO nice to see them, especailly because the mom really helped me out and kept me strong during the Noorwood, she is such an example to me so I loved seeing her again, and of course cute little Carter! Then also my other good friend had appointments at the U so I was able to see her and her cute belly before she has such a precious baby on Tuesday! (I'm sure you are all interested in the play by play of our day, sorry for that! haha) By the time we were done with all of our visiting it was time for Mason's appointment. He gets a chest x-ray every time so that is where they send us first so by the time we see the Doc he can look at it. First in the room they did his oxygen trial to see if he could come off of his oxygen, he failed so he is still on oxygen. After that the doctor came in and the first thing he told us in his x-ray his lungs were kinda wet and his liver looked enlarged. So he felt his liver and it is enlarged....... He also has been sweating a whole ton. Well those symtoms could be sign of heart failure. But they are hopeful that it is more because his lungs are a little wet. So they upped his Lasix to try to really dry him out and our next appointment they we do a sedated echo to look at the heart and see how it is functioning. (His echo after the Glenn showed decreased function) They are hoping upping his Lasix will be the easy quick fix and that is what we are hoping for also! So we will be watching him closely for more signs or if the sweating doesn't get better! The good news of the day is after all of that the PICC line got taken out! YAY!! The first thing I did when we got home is gave him a bath! It has been 2 months since he has had a real bath so I was pretty excited for it and he seemed to like it also!

His Chest Xray from the front

From the side

I took these in radiology of their computer after they took the picture before they put them in the computer and it is hard to see the wetness in these ones but when the doc pulled them up in the room it looked more wet.

Same old Same

So nothing that new going on around here. Just loving every moment together and loving how much more personality Mason gets every day! I am amazed at the little guy how fast his strength is coming! He can now lift his head while on his stomach and yesterday he rolled from his belly to his back then last night from his back to his belly, so I feel he is starting to catch up a little! We are still struggling with the dang PICC line, this week it clotted and it has clotted before but you could still flush it you just couldn't get blood back but this time nothing was going in and nothing was coming out so we had to go spend an hour in infusion therapy to get it worked out. My friend Katy has been so great and helps with Ryder anytime I need it so THANKS Katy! You are the best! Tomorrow is the Braveheart run and we are so honored that they picked our family to raise money for their first annual race! I met some of the cadets tonight and they were all so nice! We are still so grateful for all the hard work they have put into this! Mason has a day full of appointments on Thursday so fingers crossed we will come home oxygen free!

My cute litte St. Patrick's Day boys!

Our Heart Hero!

Once again took advantage of a picture while switching oxygen stickers!

Time is Flying!

Well obviously we have been home for a bit and I haven't posted anything! So where to start?! I guess we will start from when we got home, he is LOVING being home and we LOVE having him home! He came home still on oxygen and with his PICC line, UGH that PICC line might just be the death of me! He has had it for almost a month and still nothing is figured out with it. Home Health is coming almost daily drawing labs to see the antibiotic level in his blood and it is always too low so he is at 190 mg of Vancomycin. It makes me kinda nervous because a side affect of Vancomycin is hearing loss and he is on a lot for a little guy, so needless to say he is going to have a hearing test done on Monday. Also the dang thing has clotted twice! So I cannot wait for that to come out, It gets to come out on the 24th, WAHOO!! He also has had a post op appointment and they did a trial to see if he could go off his oxygen and he failed :( But they will try again on the 24th and fingers crossed we will come home without a PICC line and Oxygen! Up to 3 Ealry Intervention has come in to evaluate him and he is at 5 months on most of his skills and development except his gross motor skills. He is only at the same level as a 2 month old in that section. He is barley starting to lift his head off the ground while on his tummy and he doesn't put any weight on his feet so that puts him behind. But they will have one of their PT's come out and work with him to get him back on track. I cannot belive he is already 5 months old!

Things Mason loves/does:

He weighs 11lb 2oz (still not on the charts but growing!)

He is 23 1/2 inches long (1% yay)

He LOVES his mom! ♥

He thinks his brother is the funniest person ever!

He likes to eat his toes

He is curious about new people

He likes to watch the dog

He LOVES toys!

He smiles at anything, even when he is crying

He brings so much love into our home!

We love you Mason boo!

I had to take advantage of him pulling his oxygen stickers off of his face and get a picture of him oxygenless! :)

He is so happy most of the time!


His smile is contagious!