Our Lil' Hero: Picture OVERLOAD!

Monday, February 21, 2011

Picture OVERLOAD!

Well the past three weeks have been quite the whirl wind! You got all the updates and I hope you are prepared for all the pictures that went with them..... So here they are a portion of the pictures.....

Mason

Mason and Mommy right before the Glenn

Not much do do waiting in the waiting room for 7 1/2 hours except this :)

Just after surgery

Tube Free

Poseter from Kids Crew

Sleepy boy

The First Wagon Ride

Going Home from the Glenn Procedure

Sick boy....Back again

Mason and Mommy

Mason and Daddy

Waiting to go back into surgery

A few days after being reopened

Our Sweet boy

Big Stretches!

BIG boy!

Home AGAIN! :)

9 comments:

Kirsha said...: Mollie

you look amazing! Your little guy is such a fighter! When he is home and able to have visitors I wanna come and hold the little wonder baby! I miss you at work and hope things continue to improve for you and your little family!; February 21, 2011 at 7:52 PM
Hillman's said...: Zac and Mollie,
Thank you for sharing these precious pictures with us! You are such a great example for all of us. Mason is such a strong little boy! He is such a fighter and has such a strong personality. We love you guys. XoXo; February 21, 2011 at 8:15 PM
brenda said...: Love, love the pictures! I serioulsy can't believe what they can do medically. Seeing those pictures I am just amazed. I can't wait until I can come coudle him!; February 21, 2011 at 8:51 PM
Lindsay said...: Mollie, you're little guy is so adorable. It made me cry to see his little smile even though he is going through all of this. I hope the best for you and your family.; February 21, 2011 at 9:30 PM
brandib said...: what a precious boy!!! He is a wonder to all. If only we all could be like him and smile when we are having so many issues. I love the pics. Thank you so much for keeping me updated. Thinking of you and your family. Love you guys!!! Keep being strong.; February 21, 2011 at 11:02 PM
Anne said...: Oh his cute smile and big bright eyes are killing me! Such a sweet boy. So glad you are home. Call if you need ANYTHING!; February 22, 2011 at 8:29 AM
Katy said...: LOVE the pictures! He is SO stinkin cute! And you my dear are beautiful! So glad you are home!!; February 22, 2011 at 9:47 AM
Unknown said...: He must be the happiest little guy around. Love those adorable smiles of his.; February 23, 2011 at 11:20 AM
The Perry Family said...: What a blessing Mason is! He is seriously so precious. Always thinking about you guys! Love ya girl!!!; February 23, 2011 at 3:08 PM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.