Our Lil' Hero: Back to Surgery

Friday, February 11, 2011

Back to Surgery

Well Mason is going back into surgery late this afternoon. This morning on rounds Dr.Burch (the surgeon) decided Mason's incision looked a little more red and puffy so he dedided to lance a little of it open and when he did it was full of puss, so needless to say he is full of infection! I'm relieved to know that they found the source but pretty nervous for him to have to be opened back up and cleaned out. His hematicrit is also low so he was recieve another blood transfussion. He has been going along perfectly after surgerys so I guess a little hiccup is expected now and again. He is still such a fighter though, he still finds the strength to smile for a min and show his sweet personality!

4 comments:

Kirsha said...: Mollie,

I will be thinking about you and your little man today and hope that everything will be ok with this new surgery! sending love and prayers your way!

Kirsha

oh....and p.s. happy birthday the other day!; February 11, 2011 at 11:45 AM
Unknown said...: I'm sorry He is back into surgery again. I hope you know I think about your little Mason daily. :); February 11, 2011 at 3:01 PM
Rowland Blog said...: Stay strong sweet girl!!!! You have so many people surrounding you with their support and love!; February 11, 2011 at 9:39 PM
Kas said...: He is such a sweet strong fighter! I will pray for a swift recovery and no more infection! Lots of love your way!!; February 11, 2011 at 9:54 PM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.