Our Lil' Hero: We made it to Boston!

Saturday, January 11, 2014

We made it to Boston!

We arrived to Boston safe last night. Our day of traveling couldn't have gone better! Our first flight out of Salt Lake at 8am. We had decided before we went we would sit in the very back of the plane so if there were sick people they weren't behind us. We boarded first to Clorox our seats for Mason and then sat down. The flight wasn't a full flight so we had nobody around us at all! It was so nice! Our flight from Chicago to Boston was full but I didn't hear any coughing, so I felt relaxed the whole time. We were greeted at the airport with our family picking us up. It is such a nice thing to see friendly familiar faces when arriving here. They brought us to our hotel next to the hospital and we went down and ate at the food court together. Ryder and Sonny loved catching up(they are a few years apart) and Mason and Ivan were like little grown ups talking together. My boys sure do love their cousins. We slept good and will just spend the day getting used to the time change and getting settled. Thanks for all the continued prayers, love, and support. We couldn't do this with out all the help we have received. Monday the craziness will start so for now we will enjoy the calm. <3

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.