Our Lil' Hero: Surgery is Rescheduled

Thursday, January 16, 2014

Surgery is Rescheduled

Mason got discharged from the hospital yesterday morning right after breakfast. We were given instructions for surgery Friday. He was going to be first case so we were going to have him at the hospital at 6am tomorrow. Zac's parents flew in last night to be here for surgery and today the plan was to head into the city and show them some of our favorite places. As we were all getting ready this morning I got a call from the surgery scheduler. Dr. Emani had an emergency case come up and needs to do surgery for that child tomorrow first case. They had to change Mason's surgery to Tuesday first case. It is kind of a bummer for the fact of flights home for Zac, Ryder, and Zac's parents had to be rescheduled and that puts us being away from home that much longer but I am glad that we are not the poor family having to go into an emergency surgery. Mason is stable and is able to have surgery later so I have to focus on that side of things. I pray that everything works out for that family. So now surgery is Tuesday, January 21st at 7:30am(eastern time). I am thankful rescheduling the flights didn't turn out too stressful and that we were able to have a great day out today as one big happy family.

3 comments:

Unknown said...: Thanks for keeping us updated. Sorry the surgery was postponed but I'm glad the flights were able to be rescheduled. Know our prayers will continue to be with you all.; January 16, 2014 at 4:15 PM
Cherryl said...: I am sorry about the reschedule also, but I am sure it was for a reason. I hope that you didn't have to pay more for the air fares. Good luck and God bless you. I will be fasting for Mason and the doctor Sunday. Love, Cherryl; January 16, 2014 at 6:22 PM
Hilary and Eric said...: Yay more days to enjoy such a great city together as a family. Love to you friend - everything is going to go perfectly <3; January 19, 2014 at 2:06 PM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.