Our Lil' Hero: Well We're Back

Saturday, November 27, 2010

Well We're Back

I guess we can call it here our home away from home. We
are back at the hospital for another stay. This morning my
mom and Z noticed he was breathing kinda funny so I grabbed
the monitor and it was saying his heart rate was in the 180's
so I checked it manually and got 200. He was also retraction
mildly. I called down here and they told us to get down here
to get checked out. When we got here his heart rate was 200
still. They did an EKG and it just said fast heart beat but no other
abnormalities. They've done labs, urine tests, chest and stomach
xrays and they still are trying to figure it out. They admitted him
at least for the night and have him on telemetry to see what they
can figure out. So we will be here at least one night maybe more
depending on what's going on. I'll keep updating but I'm doing
it from my phone so sorry if I don't detail because it's hard to
post on it.

1 comment:

Mary said...: I sure hope everything is OK and its nothing serious. We think about you guys all the time. Prayin everything goes well.; November 27, 2010 at 8:49 PM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.