Our Lil' Hero: Great Day!!

Friday, November 5, 2010

Great Day!!

Today they extibated him!!! He is breathing 100% on his own and WITHOUT oxygen!! He is such a little trooper! We couldn't ask for a stronger baby! They also took out 2 of the 3 chest tubes. Tomorrow they are hoping to take out the pacer wires and the art lines (sp?) when those come out they will take out the last chest tube and we will be able to HOLD HIM! It has been over a week since we held him last and I am dying to just cuddle him! Him being such a fighter and all the prayers that each of you have said, and the such great staff here is what has gotten him to where he is today! THANK YOU!! :)

7 comments:

David and Company said...: What great news. We pray for him everyday. Harlee prays daily that R's baby brother will get better. Let us know when you get to snuggle him. What a fighter. Hope you are hanging in there too. Try and take care of yourself as well. Love ya tons.; November 5, 2010 at 9:55 PM
brenda said...: YAY!!Way to go Baby M!!!; November 5, 2010 at 10:37 PM
thecannon5 said...: YAY, My heart is filled with Joy. Thank goodness for prayers. He is such a fighter. I am excited for you guys to hold him, YAY. Thanks for the updates. I love checking and reading this everyday. Love and miss you guys.; November 6, 2010 at 11:29 AM
Unknown said...: That sounds so great!; November 6, 2010 at 12:59 PM
Unknown said...: I'm so glad to hear that. That is an amazing hospital. The staff is great. Can't wait to se the little one with his Mohawk again. Take care and God bless.; November 6, 2010 at 4:15 PM
Bj said...: Oh what great news! Cuddle him like crazy!; November 6, 2010 at 10:21 PM
Cheri J. Crane said...: Wonderful news!!! =) And proof that prayers are answered. Know they will continue.; November 7, 2010 at 7:57 AM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.