Our Lil' Hero: Post Op Day 12

Sunday, February 2, 2014

Post Op Day 12

Mason had another really good day today. He woke up happy and stayed happy for most the day minus when it was time for meds and vitals. Our roommates got moved to a different room and nobody moved out of the ICU today so Mason gets his own room tonight, YAY! Funny thing, Mason thinks the hospital cafeteria is McDonald's so today for lunch he was able to go eat a hotdog at "McDonald's" I figure why not let him think that if it makes him happy! Tonight before the Super Bowl started he wanted to go for a walk. Right as we were in front of the nurses station and right before his room he fell and took the brunt of it with his forehead. It was loud, he screamed, and nurses came running. It wasn't that hard of a fall but because he is in the hospital it is taken pretty seriously. His nurse had us go straight to his room to hook him up to the monitor and so she could asses him and look at his head. Two more nurses came in to check on him and then the Nurse Practitioner. He kept ice on his head for a few minutes then was ready to go walk again. I made his ride in the car and I walked him around the halls so we could avoid that happening again. He later said that he didn't like all the people running to him, that probably seemed scary in his eyes. He watched the Super Bowl here and there. During the game the nurse tried to flush the line that was in his neck for meds and blood draws and it had gone bad. I am sad about it because he didn't have to have any pokes with it in but I am glad it lasted so long, they said they usually only last 1 week at the longest and his made it almost 2 weeks. After the game the nurse took the IV out and Mason was able to finally get in the shower. He was starting to get smelly so I was so happy to get him cleaned up. He looked so good once he got out and was dried and clean. We ended the night with popcorn, for the 3rd night, and watched Alvin and the Chipmonks. His Ativan wean today went well so if he can still do well with it he only has tomorrow on it then they will stop it Tuesday and if he tolerates it okay then he will get discharged! I am trying to not get my hopes up but I can't help it. I am ready to sleep in a real bed, not a hospital bed with him, and to take a real shower. But what I am the most ready for is to be one step closer to going back home and having our family under one roof.

Mason loves to go find Tug. It is a robot train that delivers patient food to the different floors. It rides the elevator and everything by itself. It is for sure one of Mason's favorite things at the hospital.

Chips and Dip for the Super Bowl

Right after he fell and hit his head. He wanted to make sure it wasn't bleeding and I didn't have mirror so he looked at his head through the camera on my phone. I love his little face, even when it is a little sad.

Eating his popcorn and M&M's before bed

Out like a light and pink as can be

1 comment:

Cheri J. Crane said...: What an adventurous day! =) I'm sorry he fell and bonked his head, but glad he was able to enjoy a shower, the Super Bowl, and that he is getting closer to being discharged. He looks good. He truly is Super-Mason!!!; February 3, 2014 at 6:53 AM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.