Our Lil' Hero: Time for a check up and prayers needed!

Wednesday, February 26, 2014

Time for a check up and prayers needed!

Mason had his first cardiology check up since being home almost a week. I was kind of nervous and just kept hoping that my gut and how he was acting was going to be what was reflected today, and it was! He had an echo, chest x-ray, and EKG, followed by a visit with his cardiologist. His cardiologist came in with the biggest smile and to say he was amazed with Mason would be an understatement! I kept saying, wow he has a full heart! It was so great to hear him say that because before we left he was a little skeptical of the whole thing, hopeful but skeptical.

Mason's echo seems to be the same as when we left Boston, based on numbers and measurements. His chest x-ray still isn't in the clear so he is still on his diuretics to keep fluid off. His oxygen saturations were 98%! I still can't get over seeing that number. Mason is still not in the clear with recovery so has to go to Salt Lake every 2 weeks for follow ups, but hopefully the farther we get out the farther the visits can be spread. So in a nutshell today was a great check up day for Mason!

On another note one of our dear heart family's could use some extra prayers! Our friend Teagan has been in the hospital dealing with plural effusions that his body isn't being able to kick. He is 5 and his birthday is coming up, it would be so great for him and his family if he could get home for that. We stopped and saw him today and he is one of those kids that just make you want to be positive because he is. You would never know that such a sweet happy boy is so sick on the inside. They almost got to go home but then the day that they were supposed to go the effusions were back. He was so cute with Mason, and now Mason can't stop talking about Teagan. Teagan also has an older brother who is always so nice to Ryder and Ryder always looks up to him. This family raises some amazing boys. Please pray for them and all those involved in his care. He is a Incredible (true fact!) and is going to beat these dang things, I know it!

Us, camera shy Mason, with our other family!

(Isn't there a crazy resemblance with Teagan and Mason?!)

Thumbs up and a cheek full of Starbursts for his Echo

Waiting to see the doctor

Super muscles for a Super appointment!

A lunch celebration

Tired boy on the way home!

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.