Sorry to all of you who watch for updates on here, I have slacked in the updating department since Mason was discharged. Mason has done great and continued to thrive since being discharged. Zac and Ryder flew back to Boston last week and it brought all our spirits up being together. It has been really cold here so we haven't been out too much. It is so deceiving because when we look at the temperature, even the real feel, it doesn't sound too bad but as soon as we start walking the cold that they have here is so different and seems so much colder than the same temperature at home. There has been a lot of different places/families/colleges that have brought in yummy meals at night so that has been really nice. On Sunday night we celebrated mine and Zac's birthdays before my mom and Ryder flew back to Utah. Ryder and my mom left on Monday and it was so hard to see them leave. Mason had a slight meltdown that morning because he thought he was getting to fly home. We rode the subway with them that morning to the airport and watched them through security to their gate. After they left Zac and Mase made sure I didn't stay sad too long and took me out to dinner and to pick out a present for my birthday.
Yesterday Mason had his first appointment since discharge. He was very nervous and upset about being back at the hospital. He cried hard most the time even during his chest xray and his EKG which before surgery he didn't cry at all. It was hard seeing him so stressed out about being there. He finally stopped crying when Dr. Banka came in the room. He let her listen to him and he got to listen to her, Zac, and me. After the appointment when he was all done he perked up and said "me not have to have a pokie?!" We had told him no pokies or sleepovers at the hospital but I guess he had to see it for himself and it made him really happy to see it be true. I hope that makes next week easier because he will have an echo which he can't cry for to get good pictures that they need before we can go home. And with all of us being homesick a good echo is necessary for us to get home.
Mason is doing AMAZING. His oxygen is between 97% and 99%. He wants to run everywhere to show us how fast he is. The other day he walked up a flight of stairs and ran down a long hall and wasn't even tired or blue. It was a magical moment for sure. A day that I could only dream of in the past and now it is my new reality. A beautiful reality. With how good he is doing it is easy to forget he had surgery, a huge open heart surgery changing his whole heart, a short 3 weeks ago. We are so grateful that he was a candidate for this surgery and for the doctors here that pushed the envelope to find new hope for those who qualify. I am so glad to have Mason be a pioneer in helping the doctors get better surgeries and outcomes for patients to come through after him.
Today we are taking him to Frozen at the movie theater. He loves the soundtrack and I can't wait for him to see it on the big screen with popcorn. He is excited and keeps asking if it is time yet.
I will try harder to update more often but just take it as no news is good news with where we are in the recovery as of now.
Such a tough little guy!
Going outside after the snowstorm the day after discharge
Making brownies for Zac's and my birthdays
I miss this boy so much!
Birthday partying!
Saying goodbye after they went through security through the glass. </3
Celebrating a good check up with a McDonald's lunch!
2 comments:
He looks wonderful. I am so so so happy! Thank you for updating. I've been praying so hard for your whole family. Can't wait to hear news of a fabulously perfect echo. My love and prayers still are with you <3
who hoo! He looks amazing! What a special day to be able to run down the hall. Simple joys.
Post a Comment