Our Lil' Hero: Discharged!

We are home! YAY! Mason decided to snap out of whatever he was going through and they let us come home! He was scheduled to have his Glenn on February 28th but with that other narrowing and them having to stint his shunt they have bumped it up to January 31. That is typically the youngest they do the Glenn but hey we will take it! He is on oxygen all the time and holding up really well. Ryder's birthday is coming up next week so we are just trying to get stuff ready to have a Ryder day, so I more than likley wont be updating again until the 31st! Thanks for everyone who is following Mason's progress. I really want the awareness for Congenitive Heart Defects to be more and this is really the only way I know how to help that so thank you for reading! :)

A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.

Our Lil' Hero

Wednesday, January 12, 2011

Discharged!

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