Our Lil' Hero: The Day Mason was Born.....

Tuesday, October 4, 2011

The Day Mason was Born.....

Our sweet Baby Mason turned ONE this week! What a blessing he is in our life! I saw a quote today that I loved and it said "We are not lucky, we are blessed" It is so crazy to think when he was born we were just so excited and were expecting a healthy baby and even had a "healthy" baby for a few weeks before everything happened! I am SOOOO grateful for the extra defects that allowed a little blood flow to pass through keeping him alive when we didn't know. We love this little guy so much and can't imagine what life would be like without him. One year is such a GREAT milestone for him! He will just keep beating the odd's one year at a time! Although leading up to his birthday I struggled with emotions thinking a year ago I never would have thought we would be where we are now and gone through what we have gone through. He had a great small birthday party that I will upload those pictures later but I thought I would share the pics from the hospital when he was born. He was born on October 1, 2010 at 4:00 in the morning. He had a rough delivery where they lost the heartbeat at the very end and thankfully he was born right after that and they were able to get him out and crying. He weighed 5lb 14 oz and was 18 inches long. ♥

Right after delivery (yes he was really blue when he was born, then pinked up for a bit)

Sleeping is what he definatly did best!

A proud big brother!

Our first picture as a family of 4

In the car on the way home!

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.