Our Lil' Hero: Slacking!

Thursday, December 22, 2011

Slacking!

Well it has been too long since I last updated!!! I swear once Halloween is over time just goes by so fast! I am trying to think of what has happend the last few months so I will start with our last Cardiology visit we had in the first of November. Mason was so good and didn't cry during any of it, orginally because of his leaky Mitral Valve getting worse we were going to have to have another Echo done this month(December) well the appointment went SOOO good that we were able to cancel that, everything else was so good we actually get to go a full 6 MONTHS before having to go back! Seriously was the best news we have gotten since we started this heart journey a year ago! Mason has loved the holidays, he LOVES Christmas lights! He is still a tiny little squirt but his big personality makes up for that! Oh another thing.... HE IS WALKING!!!! They told us he prob wouldn't walk until he was close to 2 because he wouldn't have the energy to. Well he may be lacking half of a heart but he is sure not lacking ANY energy! Today the physical therapist came and we signed the papers saying we no longer needed their service. He is not delayed in anything anymore. He is doing sooo good! It is hard to believe a year ago they told us we more than likely wouldn't get to bring our sweet baby home, but Mason has proved in many ways that the odds don't apply to him. ♥

At our ward's Trunk or Treat

I can't help but post this daddy picture

Mason before his first hair cut

My handsome monkey after his hair cut

Somebody doesn't like santa

An everyday battle at our house. Mason LOVES to pull Ryder's hair. Ryder doesn't love it so much but I couldn't help but get a pic of it.

♥

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.