Our Lil' Hero: Crazy Summer!

Sunday, September 4, 2011

Crazy Summer!

So it has been awhile since I last updated so where to even start?!! We obviously got to come home and the first blood culture was contaminated so he was good there. After that we have had a fun and busy last of summer. We attended heart camp which was a blast! We are apart of a support group called Intermountain Healing Hearts and they have some fun events and that was one of them. If you want to know more about them or donate to them in Mason's name go to www.intermountainhealinghearts.org Then there was another hospital visit. Mason had a small seizure so we had to go back to primarys and stay the night in the Rapid Treatment Unit but they said everyone gets a free pass with those and if it happens again then they will want to do CT scans and EEG's. He is going to be having eye surgery on October 7 with antoher sedated echo. I can't believe Mason is going to be one in less than a month! I'm so excited to hit that milestone and for him to beat the odds that they gave him! He proves to be a fighter every single day and we couldn't be more proud! ♥

He pulls himself up to everything!

Ryder and Mason at Heart Camp

My little Hawaiian Baby

Mason's first campout! (In grandmas backyard)

The boys

My favorite picture from our family pictures done by Stephanie Tueller!

1 comment:

Heather K. said...: We love you Mason!!! Glad you are doing so well right now....serves you right!

Cute pics posted...such a cutie! He will do WONDERFUL with his eye surgery!; September 13, 2011 at 9:38 PM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.