Our Lil' Hero: Back Again!

Friday, July 8, 2011

Back Again!

Well we are back at the hospital again. Only made it home for 12 hours! So this morning the phone started ringing at 4am Luckily (yes I said luckily) it was turned down so I didn't hear it until 7. It was the Pediatric fellow up here saying that we needed to get back down here to the ER because Mason's blood culture grew back positive. Mason was still asleep and I didn't find it that emergent so I let him sleep awhile longer before heading back. Once we got here to the ER they were waiting for us so they took him right back to a room and we started everything over again. Luckily this ER visit was a lot shorter! They drew labs and his white count has gone even lower and with that positive blood culture they admitted him because if it is true that he is growing a bacteria then he wont be able to fight it. The bacteria that grew back could be a false positive because it is the same bacteria that grows on your skin so it could have just been contaminated, but they are keeping him until the one they drew today comes back. And also he has been extremely sleepy so they just want to watch him again. Anyways that is the latest with our little guy! We are hoping for the contaminated blood culture but we are glad they are being cautious.

2 comments:

Rowland Blog said...: Hope everything goes good! Poor little man!!!!; July 8, 2011 at 10:10 PM
brenda said...: Hope things are good and you get to come home soon!; July 8, 2011 at 11:03 PM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.