Our Lil' Hero: Happy 2 months old!!!

Wednesday, December 1, 2010

Happy 2 months old!!!

Today little M is 2 months old!! Wahoo! He had a cardiology appointment today and is doing pretty good. Now his heart rate is on the low side, go figure! He weighs 7lb 2oz, so still tiny but growing. I asked them if they had to estimate when his next open heart surgery would be and they are thinking February/March. But they will have to put him out for a couple of procedures before they do the surgery. So our lives will continue to stay pretty crazy for awhile.

5 comments:

brenda said...: He is just too cute!! Happy two months M!!!; December 1, 2010 at 10:37 PM
Tara said...: What a cutie! Love his big eyes!; December 2, 2010 at 10:22 PM
pmday said...: He is such a cute little guy! I'm glad he is such a fighter and is doing good. You guys are still in our prayers and I hope you have a happy holiday season!
Kristin; December 4, 2010 at 11:02 PM
Cheri J. Crane said...: What a cutie! Hang in there and know our prayers continue to be with you all. =); December 8, 2010 at 5:35 AM
Heather K. said...: Wow! Can't believe he is 2 months old already! I'm glad he is still doing good and gaining weight steadily!; December 11, 2010 at 9:28 PM

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A little about Mason

This is a journey through Hypoplasic Left Heart Syndrome (HLHS). Mason was born on October 1, 2010 as what we thought was a healthy normal baby boy. At 3 weeks old we found out when he was life flighted to Primary Children's Medical Center that he was born with an Unbalanced AV Canal Defect that caused him to have Hypoplastic Left Heart Syndrome. He also was diagnosed with 2 Large ASD's a VSD, a CoArch of the Aorta, and a small leaky Mitral Valve. He had his first open heart surgery, the Norwood, in the end of October 2010. After surgery his chest was left open and they surgically closed it a few days later after the swelling went down. He had his second open heart surgery, the Glenn, in January 2011. He did great with recovery and got discharged 1 week later. We had him home for 1 day then he was rushed back to the hospital where they found he had a sternal infection and had to open him back up and wash out all the infection and he had a picc line placed for 6 weeks for antibiotics. He had a couple of heart caths during that time, and echo every 3-6 months, and eye surgery.
In February 2013 we sent his records to Boston to explore different surgical options for him. We found out he was a candidate for a surgery called the Staged Left Ventricle Recruitment to the BiVent. With this surgery it would grow his left ventricle to normal size and then give him normal circulation to hopefully avoid him having to have a heart transplant. (if we didn't go this route we have been told with his anatomy he would need a transplant in his teens). With the help of friends, family, and strangers we went to Boston where he had the first of hopefully only 2 surgeries. He had his 3rd open heart surgery in June and right now his heart is growing and conditioning to be able to handle the load of the work that a normal heart does. He is due to have his 4th open heart surgery in the first of 2014.