Our Baby M

Welcome to our blog for our baby M. Thanks to everyone who is thinking and praying for our family at this time. I am not making this blog private so our friends and family members who don't have blogs can get the updates also. I am kinda a freak when it comes to security so I am not posting where we are or what his name is. Everyone who knows us knows where we are and what baby M means. Our other little guy I will call R.

Tomorrow baby M is going in for his first surgery. He has Hypoplastic Left Heart Syndrome. That in a nutshell means the left side of his heart is too small to support his body and doesn't function adequately so they call that heart failure. He also has a mild Co-arch. He has some other heart problems also but they have told us so many names I can't quite remember them all but will update when I hear them. What they are focusing on right now is they hypoplastic left heart. It is one of the most major heart surgeries that they do, but we have only high hopes for our little one. He is having a surgery called the Norwood Procedure. It is a 6 hour surgery and will make him very sick for a few days. We wont be able to hold him for up to 2 weeks after and he will be at the hospital for at least 4 weeks. That is the heart things we are dealing with right now and we are just taking it one day at a time.

What happened:

Monday morning I went to pick him up and his coloring started going bad then he stopped breathing. It took quite a bit of stimulation to get him to come out of it but when he did he had no muscle tone. That's when I packed up him and R and went straight to the ER. At first they thought it was a possible infection at first. When they did they chest xray they noticed his heart was big, then they did an EKG and that didn't come back right, then he had an ECHO and that's when they decided to Lifelight him. When they got him here they did a pediatric ECHO, and found it was a little worse than they thought so they gave us an outlook on some surgeries. Then yesterday they did an MRI and found it was a lot worse than they thought and got a surgery team ready for Friday. They said there will be at least 20 people in on his surgery. He is on a vent and other than that doing better than they ever expected he would do. Most people know right after their baby is born that they have this heart issue but we didn't know until 3 weeks of age. It was nothing his doctor missed or anything like that. Looking at him and even listening to him they still are not able to hear anything out of the ordinary, so he just did a cry for help when he stopped breathing and we are VERY fortunate how well he is considering the situation because he should have had organ failure and it could have been very tragic.

So this is where we are at today, with all the events leading up to it. I will update as often as I can and need to. I appretiate all the texts, calls, and voicemails. We have to have our phones off and it is just really hard to respond to everyone because of time and it is very draining repeating it and bringing back the feelings everytime so this is why I made this blog so everyone has an update if you'd like one. We are so thankful for everyone who is praying for us and fasting for our baby M and our family. We are feeling the blessing and peace from them. Thanks again and I will update tomorrow or Saturday. Feel free to comment but please don't put his name in the comments.