Tender Mercies

Well we are back in Boston! At Mason's summer cardiology appointment at Primarys his doctor was concerned about the fact that he hasn't gained weight in the past 2 years and that he wasn't any closer to being able to start weening off of any of the meds he has been on since surgery. He sent the info to Boston to his doctors and they all decided that they would like Mason to come for a cath and surgery because we are in a window of opportunity and if we miss this window then nothing would help and he wouldn't even be eligible for transplant, so plane tickets were booked and we prepared for a surgery and a plan to be in Boston for a month. We flew into Boston on Monday and started the craziness of pre op appointments on Tuesday. They admitted him after pre op due to the low blood sugars from the last cath and ran some sugar through an IV through the night so he would have safe blood sugars for his cath. He stayed so brave waiting to be taken back for the cath and blew lots of bubbles. After the cath his cardiologist and the doctor that performed the cath came and got Zac and me and took us in the consult room and started erasing the dry erase board, all we could think of is oh crap why are they both here and this can't be good. They said everything looked great, even better than expected! His high heart pressures had come down about half over the last year and his heart looked better all the way around from the last cath. His gradient across the Aorta(where they are measuring the blockage that they were going to operate to fix) was the same which was good because they thought that it had gotten worse. With all that info they see no need for Mason to have to have surgery on Friday! Talk about a tender mercy. It has been so stressful coming with in impending surgery, a newborn, and Ryder at home, so this is HUGE news. Before we came I read a general conference talk about tender mercies and this is definitely one of those. It was a talk given by David A Bednar and in it he states, "the Lord’s tender mercies do not occur randomly or merely by coincidence. Faithfulness and obedience enable us to receive these important gifts and, frequently the Lord’s timing helps us to recognize them.We should not underestimate or overlook the power of the Lord’s tender mercies. The simpleness, the sweetness, and the constancy of the tender mercies of the Lord will do much to fortify and protect us in the troubled times in which we do now and will yet live." You can click HERE for the rest of his talk, which is a great one. The thing is, this wasn't the only tender mercy during this process. First we have been blessed with a baby who is so good and only fusses when she is hungry. Second we were having a headache with insurance and all that was figured out. His heart being better instead of worse like they were expecting, and the airlines saying they would refund the money for flights less than 24 hours before travel time for my mom and Ryder's flights. Those are just the big ones and there has been more smaller ones all along the way. It is such a humbling experience to see the lords hand working everything out. So now we get to come home alot earlier than the 30 days we were expected to be here. We are so grateful for everyone's prayers I know with those and priesthood blessings that helped things happen how they did. Today can go down in the books as a great day and I day that we will be forever grateful for! Now the plan is to meet with GI and Endocrinology when we get back and figure out a plan to see why he isn't gaining weight because they have ruled out it being his heart. They know he is hypoglycemic through the night and there is talks of him needing a GTube. Thanks for all the prayers and support that has been given to our family.  We could't do this without you!

 Glove boy 

He was so tired he fell asleep during his echo

 Mason and "his dog" Burt

 The nurses couldn't get over how much he loves his little sister.

 Riding the halls

 Waiting to go back for his cath

 post cath

 Mason and Dr Banka

Even after almost 2 years I can't get over his high oxygen levels!