Red Sox, Heart Cath, Prayers, and Fun

We(Mason, Kylee, and me) are back in Boston!! I am so hit and miss with updating his blog but do think about it a lot, it's the thought that counts right? We are back in Boston because Mason had a scheduled heart cath surgery to check his pressures.  We got here on Monday to start the crazy schedule on Tuesday.  We had to be at cardiology pre op on Tuesday early morning.  It was so hard to get Mason up due to it being 5:30am in Utah still and being so tired from traveling the day before.  His appointments went so so well! They were going to have to balloon his pulmonary artery, but when they did the echo it showed that it had actually fixed itself! They couldn't have been happier with how all the data was looking from his echo and chest xray!  They scheduled Mason to be first case in the cath lab.  We were trying to decide what to do the rest of the day after he was done with his appointments and then we got a phone call saying there was some Red Sox tickets donated and available if we wanted to go so of course we took them! It was FREEZING cold but so worth it.  Mason sure does love the Red Sox and wants to be a "Red Sox gamer" when he grows up.  In the morning we had to be at the hospital at 6:40am.  He was trying to be so brave, he was polite to the nurses and was talking to Aggie but you could tell he was so nervous.  When the anesthesiologist and the nurses came in to give him his versed shot in his arm he even lifted up his little sleeve on his arm for them to put the poke in as tears rolled down his cheeks because he hates pokies the very worst.  It breaks my heart seeing him be so brave knowing that it was going to hurt.  It only takes a few minutes and then he is out and they wheel him away.  It never gets easier giving my baby to them.  His cath only took just over 2 hours because they didn't need to do any intervention! I was so happy about that.  I wish I could say everything looked perfect in his cath but unfortunately that wasn't quite the case.  His pressures in his heart are too high and his heart is on the stiffer side and isn't relaxing all the way so it is having to work extra hard.  It isn't severe so that is good but it still is very serious and we need to start doing everything we can do to try to fix the problems.  The hard thing is with some of it there is no medication or intervention that directly helps.  There is meds that indirectly can help so all the meds he is currently are on are being increased to their max doses and he is going to start some new ones.  Also when we get home he will have to do a holter monitor test to  see what his heart does as he plays and does his thing at home.  The results were pretty shocking because physically he shows no signs or anything being stressed, that makes us VERY hopeful though that we caught it early and can fix it without too much stress.  Since he didn't have any interventions he got to be discharged after he laid flat for 6 hours and had a chest xray.  I have to say how amazing he was laying flat for 6 hours straight.  He only napped for 10 mins at the most and he just laid there and talked and watched movies without complaining.  There was a 20 year old next to his room and all he was doing was throwing a fit about laying flat for 6 hours and there is my crazy, full of life 3 year old showing us how it's done to be strong and brave and do what you have to do without complaining.  When he got discharged we had a low key night.  Today we were going to go into the city but last minute got another phone call saying there was more donated tickets available so of course we took them! It was a rescheduled game from the night before due to being rained out so it was in the afternoon.  Mason already is asking when we can go to another game, he would go everyday if he could, and I would take him because he sits and watches the whole time.  We fly home in a couple days and it will be so good to see Zac and Ryder because we miss them tons.  He will be followed closely at Primary Children's and then we will come back to Boston for more follow up in 6 months.  Keep Mason's heart in your prayers that it responds well to the med changes that that his whole heart will keep beating strong! Mason Strong!

 

Mason and "his dog" and the Yawkey Family Inn

 

Freezing at the game

Kylee(Mason's aunt) and me loving the game

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Kylee's first Taxi ride!

Baseball boy

 

He was so tired he fell asleep on my face sitting straight up.

 

Waiting to get his heart cath

 

Aunt Kylee feeding him popsicles after he woke up

 

 



2nd Red Sox game of the week.

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